Several pharmacuticals companies are in a race to develop the first NASH treatment drug. Currently there isn't any treatment available for my type of liver disease (NASH)- it's watch and wait for the shoe to drop (months? years? decades?) and then if I'm lucky I may get a liver transplant. That's alot of months and years of being really sick, something I just wasn't looking forward to. For 3 years I've tried to get into promising clinical trials but becuase of the severity of my cirrhosis I've been excluded.
For the past couple of months I've been going thru the hoops of trying to qualify for an expanded double-blind phase 3 clinical trial for people with later stage disease. I did weeks of blood work, scans, fibroscan, biopsy and more blood work. Today I found out that I am IN.
This is the news we've been praying for! The upside of this trial is that they are seeing amazing results. Patients are seeing their liver damage REVERSED. Other patients have seen years of stability. This all sounds incredible to me!
But is it too good to be true?
There is the chance I will receive placebo. If I do receive the drug, there may be many side effects to deal with. And then there's this report from the FDA of 19 people who have died on this drug.
Overall I feel good. I am pain free and my new clinical trial team knows how important my work and being highly productive means to me! So I think this is really great news overall and I will keep you updated.
For the past couple of months I've been going thru the hoops of trying to qualify for an expanded double-blind phase 3 clinical trial for people with later stage disease. I did weeks of blood work, scans, fibroscan, biopsy and more blood work. Today I found out that I am IN.
This is the news we've been praying for! The upside of this trial is that they are seeing amazing results. Patients are seeing their liver damage REVERSED. Other patients have seen years of stability. This all sounds incredible to me!
But is it too good to be true?
There is the chance I will receive placebo. If I do receive the drug, there may be many side effects to deal with. And then there's this report from the FDA of 19 people who have died on this drug.
Overall I feel good. I am pain free and my new clinical trial team knows how important my work and being highly productive means to me! So I think this is really great news overall and I will keep you updated.
RSS Feed
